World Federation of Hemophilia

World Federation of Hemophilia
Founded1963; 61 years ago (1963)
FounderFrank Schnabel
Location
Area served
Worldwide
MethodTherapy, Aid, and Education
Members
147 National Member Organizations[2]
Key people
President Cesar Garrido [3]
Websitewfh.org

The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improving the lives of people with hemophilia (also spelled haemophilia) and other genetic bleeding disorders. It educates people with bleeding disorders and lobbies for improved medical treatment.[4][5] 75% of people in the world with bleeding disorders do not know it and do not receive care.[6][7]

The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada.[1][8] It has member organizations in 147 countries and official recognition from the World Health Organization.[2] The current President is Cesar Garrido.[9][10]

  1. ^ a b O'Mahony, B. (October 2004). "WFH: back to the future". Haemophilia. 10 (s4): 1–8. doi:10.1111/j.1365-2516.2004.00981.x. ISSN 1351-8216. PMID 15479364. S2CID 25043790. World Federation of Hemophilia, Montreal, Quebec, Canada...the WFH headquarters at the address above.
  2. ^ a b Pierce, Glenn F.; Adediran, Megan; Diop, Saliou; Dunn, Amy L.; Ekiaby, Magdy El; Kaczmarek, Radoslaw; Konkle, Barbara A.; Pipe, Steven W.; Skinner, Mark W.; Valentino, Leonard A.; Robinson, Fiona; Ampartzidis, Georgios; Martin, Jayson; Haffar, Assad (2022-09-01). "Achieving access to haemophilia care in low-income and lower-middle-income countries: expanded Humanitarian Aid Program of the World Federation of Hemophilia after 5 years". The Lancet Haematology. 9 (9): e689–e697. doi:10.1016/S2352-3026(22)00209-5. ISSN 2352-3026. PMID 36055333. S2CID 251960105. The World Federation of Hemophilia (WFH) was created in 1963, and, nowadays, it includes national member organisations from 147 countries.
  3. ^ "Governance - World Federation of Hemophilia". Retrieved 2021-05-27.
  4. ^ "Vision and Mission - World Federation of Hemophilia". www.wfh.org. Retrieved 2020-04-16.
  5. ^ Raabe, Michelle (2008). Hemophilia. Infobase Publishing. p. 123. ISBN 978-0-7910-9648-2. The WFH is an international, not-for profit organization that works to improve standards of treatment, promote advocacy, provide education, and advance medical research concerning hemophilia.
  6. ^ Venkataraman, Lakshmi (16 April 2019). "World Hemophilia Day - Reaching Out". Medindia. Retrieved 2023-04-18. World Hemophilia Day 2019 aims to reach out as far and wide as possible to ensure proper diagnosis and treatment to nearly 75 percent of patients who still remain undiagnosed or don't have access to treatment.
  7. ^ "Fast Facts". National Hemophilia Foundation. 2014-03-04. Retrieved 2020-04-16.
  8. ^ James, Andra H. (7 May 2008). 100 Questions and Answers about Von Willebrand Disease. Jones & Bartlett Learning. p. 117. ISBN 978-0-7637-5767-0. LCCN 2008011434. The World Federation of Hemophilia (WFH) was established in 1963 by Frank Schnabel, a Montreal businessman born with severe hemophilia A.
  9. ^ "History - World Federation of Hemophilia". www.wfh.org. Retrieved 2020-04-16.
  10. ^ "World Hemophilia Day 2023 - "Access for All: Prevention of bleeds as the global standard of care"". Yahoo Finance. 17 April 2023. Retrieved 18 April 2023. Cesar Garrido, WFH President.