Founded | 1983 |
---|---|
Legal status | 501(c)(3) nonprofit organization |
Headquarters | 55 Kenosia Avenue, Danbury, Connecticut[1] |
Services | provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers. |
President and CEO | Peter Saltonstall |
Website | rarediseases |
The National Organization for Rare Disorders (NORD) is a nonprofit organization, based in Connecticut,[1] aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.[2] It was founded in 1983 by Abbey Meyers, along with individuals and rare diseases leaders of rare disease support groups, and it is a 501(c)(3) tax exempt organization.[2][3][4]