National Organization for Rare Disorders

National Organization for Rare Disorders
Founded1983
Legal status501(c)(3) nonprofit organization
Headquarters55 Kenosia Avenue, Danbury, Connecticut[1]
Servicesprovide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.
President and CEO
Peter Saltonstall
Websiterarediseases.org Edit this at Wikidata

The National Organization for Rare Disorders (NORD) is a nonprofit organization, based in Connecticut,[1] aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers.[2] It was founded in 1983 by Abbey Meyers, along with individuals and rare diseases leaders of rare disease support groups, and it is a 501(c)(3) tax exempt organization.[2][3][4]

  1. ^ a b "National Organization for Rare Disorders (NORD)". NIDCD. 23 June 2020. Retrieved 30 September 2023.
  2. ^ a b "About NORD". National Organization of Rare Diseases. 30 July 2008. Archived from the original on 17 February 2009. Retrieved 14 February 2009.
  3. ^ "The National Organization for Rare Disorders (NORD) Names Peter Saltonstall New President". Reuters. 5 May 2008. Archived from the original on 4 January 2013. Retrieved 14 February 2009.
  4. ^ "Episode 329: Orphan Drugs". 99% Invisible. 13 November 2018. Retrieved 18 November 2018.